3 Year Post Op Scar

Three years ago on September 20th, I had a total thyroidectomy.  This is what my scar looks like today.

2 year cancer follow-up

I went to the ENT that removed my thyroid two years ago.  He recommended an ultrasound to see if there were any changes.  The ultrasound showed that I have a tumor in a lymph node, but they were very confident that the RAI had killed it.  It hasn't changed in size in the last two years.  Also my thyroglobulin levels have been non-existent the last two years.  I am to return in a year for another follow-up.

16 months Post Op Scar

15 Months Post Op scar

14 Months Post Op Scar

RAI anniversary

It's was a year ago that I had the radioactive iodine treatment.  I lost most of my taste within 24 hours of the treatment.  My taste is still not back to where it was before the treatment.  Most food tastes bland to me.  I can still taste sweet, that one never left thank goodness!  Some days I taste sour really strongly, other days food tastes really salty to me.  I am hoping that it comes back soon!

13 Months Post Op Scar

1 Year Post Op

11 Months Post Op Scar

Post Op Scar 10 Months

9 Month Post Op Scar

8 Months Post Op Scar

7 Months Post Op Scar

6 months post op scar

Post Surgery Scar, 5 months

Post surgery scar, 4 months

Post surgery scar, 3 months

Taste

Three weeks later and I am still unable to taste foods fully.  I can taste some stronger flavors like onions, garlic and peppers.  I am also able to taste sweet foods, which is great!  Bread tastes bland to me. 

My doctor prescribed sucking on lemon drops 3 times a day for 10 days after the RAI.  Even though it's past that time, I'm still sucking on sour candies:  lemon drops, Lemonheads, and Sour Patch Kids.  I'm hoping that it will help to bring my taste back faster.

Post RAI scans

One week after the RAI treatment, I had a post-ablation body scan.  The scan lasted about 30 minutes.  My arms were strapped to my body to keep them out of the way of the machine.  I also had to lie still the entire time.  I was allowed to listen to my iPod during the scan.

In the scan above you can see where the RAI settled in my neck where the thyroid gland used to be.


There was a large uptake of the I 131 in my right salivary gland that concerned the radiologist, so he ordered a CT scan on my head and neck.  I again had to be strapped with my arms against my body and hold still for 25 minutes.  This time I wasn't allowed to listen to my iPod. 

My radiation oncologist was also concerned about the uptake of the RAI in my salivary gland, so he ordered an MRI.

I'll admit I was a bit scared for this scan.  A cage-type appartus was placed over my face and head.  I had to lie still for 25 minutes.  After 15 minutes, I was given an injection of Gadolinium, a contrast dye.  Then the scan continued.

I really had to focus on not having a panic attack and keeping my breathing under control.  I was given a panic button to push, but I figured the sooner the scan was over, the better.

My doctor called me today and said that after reviewing the scans, there were no signs of metastatic disease.  I'll need to go in for a follow-up in 6 months.

RAI treatment

I received 100 mCi dose of radioactive iodine on Thursday, Nov. 17th.  It was a capsule that I swallowed.  They kept me at the hospital for about 15-20 minutes.  I was very radioactive by the time they sent me home.  I had to ride in the back seat of a minivan for the hour ride home.

After 4 hours of ingesting it, I started to become nauseous.  I ate a small amount of dinner but didn't feel like eating much.  Went to bed around 9:00pm.

The next morning, I was still nauseous and started vomiting.  We called the doctor and they gave me a prescription for an antiemtic.  I tried to drink water throughout the day to help flush the I31 that wasn't absorbed by leftover thyroid tissue and cells. 

By the next day, I was feeling better and could eat a little bit.

I've had to spend most of my time in the bedroom and keep a 6 foot distance between me and my family.

Two days after the treatment, I was able to start a regular diet (no more low-iodine), start my new synthroid prescription and lemon drops.  Sucking on lemon drops prevents damage to the salivary glands.

On day 3, I noticed that I couldn't fully taste the foods I eat.  I'm hoping that it doesn't last too long!